Tag Archive | Pain

This is Why…

Aug3

"This is Why…" By, Nancy Alexander

Your Emails are the Reason Why…

I received  this  email this morning.  When I get emails such as this (and I receive them weekly, sometimes daily), my heart is broken.   It is broken because ladies, and sometimes men too, go through extreme pain, hurt, withdrawal, and even disbelief from doctors, friends and family when they come down with this mysterious ailment — Fibromyalgia.  They have to go way too long before finding the correct help and cure!  AND YES… THERE IS A CURE!!

 


Most of you know that mine started when I was 28.  I am now 60!  That was thirty-two years ago!!!!!! When are things going to change?  When are these ladies going to receive, first of all… understanding and belief that they are really sick, along with sympathy, and help from their own family members, and the top notch medical care they need and deserve from our many "learned" physicians in our advanced and educated country for this illness???

 

FIBROMYALGIA IS AN ILLNESS!  IT IS NOT IN THEIR HEADS, IT IS NOT SOMETHING THEY CAN "WILL" THEMSELVES TO BE OVER, IT IS A DISEASE!!


 

I become overwhelmed with anger from time to time knowing the despair and hopelessness these women feel as they are fighting a battle for their very lives, and it hit me this morning.  So many women write me for help!  I want to help them!  I want to tell them exactly what to do to get well!  I want to tell them they ARE NOT crazy!  I want to tell their husbands, their children, and their friends that they need respect, they need comfort, they need top notch medical care along with BELIEF that they are really sick with a "legitimate" disease!


 

I have told my husband soooo many times that I had wished to have been diagnosed with cancer instead… or with a heart-attack… or with some other "horrible" disease.  At least if I had been diagnosed with one of those people would have really believed I was sick.  But in 1978 and 1979, people didn't believe me — they thought it was "in my head", and doctors actually told me it was "housewife syndrome"!

 

Okay, Nancy… calm down!  Today is not 1979.  Fibromyalgia has been proven absolutely and without a doubt to be a disease; to be a horrible, debilitating disease, which not only hurts the person who has it, but every single person that they love and care for!   A chronic disease of any type affects every person in their household.

 

So, today as I read this email (as I do all of the others I receive) and see that people are still suffering before they get help, I get really angry!  This is totally unnecessary for someone to have to feel the shame and embarrassment that I felt for sooo many years.

 

But now, I can thank God for my illness, my pain and for each step along the way in my life because I CAN encourage, help and support women who cannot find the help they need right away!  I can show them love! I can tell them they are not alone!  I can tell them that I understand!

 


Email from a young woman in California: 

"First of all I would like to thank you for sharing your story. I am a 27  year old woman who has and is going thru several health issues. I also struggle with Fibromyalgia.


 This started when I was 24 and only a year into marriage. This kept me in bed rest because I wasn't able to walk or do much for myself. My wonderful husband, who has stood by my side thru all of this, would have to even bathe me and brush my hair because I couldn't do any of this for myself.

 

I went thru depression, anxiety and panic attacks because no Doctor knew what I had. Finally they diagnosed me w/Fibromyalgia and with a virus called mycoplasma. I felt no desire to live at times because I did not want to spend the rest of my life in such misery. Needles to say I wasn't able to work and help bring money into our household; which made me feel worthless.

 

It was thru those darkest times that I found God. With time, some treatments and with our Lord's grace I have been recuperating. I even went on my first jog again. That was something I thought would never be possible again. God has been so good to me and blessed me with my husbands love and support.

 

Now we are struggling with starting a family because I started pre-menopause at the age of 22. I wanted to keep my mind and body occupied and away from negative thoughts and since I made some of my own Christmas decorations last year I thought I'd give it a try and sell some…THAT IS HOW I CAME TO FIND YOU.  Who has inspired me and given me some confidence.

 

I purchased your Secret Vendor List back in May and I am purchasing things and getting things ready to start making and selling Christmas wreaths….."

 

 

So, I have let off some steam this morning!  I have let out some of the anger that engulfs me from time to time.  This young woman went for 5 years before finding out what was wrong. EVEN FIVE YEARS is WAY too long to suffer without knowing what is wrong!

 

I fought with every ounce of strength in my body for almost 25 years before getting a correct diagnosis and receiving proper medical care.  I had to do the research and find out by myself what was wrong with me…while fighting a battle all alone! 

 

It is now my God-Inspired goal to reach these women and help them get the proper medical care they need and deserve!


 

I read this prayer this morning posted by another young woman struggling with Fibromyalgia right now — it is truly beautiful, and touched my heart.  I hope it will touch yours too!


 

"Be present, Lord, among us and bring us to believe we are ourselves accepted and meant to love and live.  Teach us to care for people, for all, not just some, to love them as we find them or as they may become.  let Your acceptance change us, so that we may be moved to practice Your acceptance, until we know by heart the table of forgiveness and laughter's healing art."

 

 

 

Fibromyalgia…Yes, I am Being Cured!

Jul16

 

"I Can Be Cured" By, Nancy Alexander

From Fibro… to Freedom…

 

I want to start doing a series of posts about how Fibromyalgia affected my body – explaining some facts about each symptom to you.  There is now lots of help for Fibromyalgia, and eventually a cure!

By doing this, it is my hope that you will begin to understand exactly how some of these strange and often misunderstood symptoms truly do affect you AND ARE REAL!  If you suffer from Fibromyalgia, you'll be more informed as you understand what is going on with your body — and — information in addition to understanding goes hand in hand in leading to a cure.

I suffered physically and painfully for many years with my entire body hurting – even my skin!  Also during these years, I also suffered much stress, embarrassment, and misunderstanding from doctors, family and friends when I would try to tell them how and where I hurt.  At times, this made me doubt myself!  Then, there were other times when I was just plain "mad" because no one could tell me what was going on and no one would believe me.


I want to tell you just a little today about how my skin hurt.  I know it sounds strange to say that my skin hurt, but it did!  Pants with a waistband hurt me, in addition to bra straps, tight collars, socks, and even shoes.  No blue jeans for me…they hurt my legs when I sat down.  I even went for several years not being able to wear a bra, so I would wear baggy clothes in layers to keep people from noticing.  Even temperatures, either hot or cold, gave me severe pain!  Deciding what to wear every day became a dreaded chore.  For me, as well as many of you who suffer from Fibromyalgia, this can cause awful, unbelievably intense pain.


First of all, I had a very low pain threshold as do most sufferers from Fibro.  This low pain threshold is a point where sensations you feel become pain.  This usually varies from person to person, but this threshold is much lower in people who suffer from this horrible disease.   A low pain threshold results in a particular form of pain which is called "allodynia". 


A definition of "allodynia" is pain, generally on the skin, that is caused by something that wouldn't normally cause pain.  Some of this pain can be caused by mild pressure which may come from a light touch, gentle massages, or sheets rubbing against the skin.


These pain signals originate within specialized nerves called nociceptors that sense information about things like temperature and painful stimuli from the skin.  This type of pain can go into other areas such as neuropathy, neuralgia, and migraine headaches.


Most of my pain which came from simple touches felt like having a sunburn all of the time.  This makes your clothes feel like sandpaper and a light touch can feel like searing pain.


I went through an awful time in my life where it hurt me to hug someone, to shake someone's hand, or to even be patted on the back.  I would find myself cowering back from any type of touch. I even sat on a pillow for many years as hard seats hurt.  My husband says that during these years, it was awful for him as well as for me because he could not roll over and put his arm around me in bed.  We slept as far apart as we could in a king size bed because I hurt so badly.


Thanks to the steps I am taking now, I can wear (tight)blue jeans, I wear a bra again (whoopie!!), and my husband can keep his arm around me all night…which he does (that is such a marvelous feeling — Thank You God!!) 


I'll be talking more and more about the symptoms of Fibromyalgia as I also talk about what is beginning to actually CURE me!


Don't give up!  PLEASE do not give up!!! I almost did,and now my life is so totally different.  I am blessed, I am almost cured, and I truly believe with all my heart that you can be too!


Smiles… Nancy